Talia Williams every day life is like keeping a fragile doll. A little friction alone will make this five-year girl was seriously injured.
Talia who daily use the material finer than wool garments will immediately experience severe injuries akihat friction fabric. He could not enjoy the chips. Therefore, these snacks will tear the mouth parts inside.
The little girl is the daughter Sian Williams is like a fragile doll. Talia suffered from a rare condition, Epidermolysis Bullosa Simplex. This disorder causes her skin to blister and flake off easily and cause severe injuries as a result only sedikt friction.
Every day Talia must wear waterproof gloves and wrapping the knee to protect it.
The mother, Sian, 33, from Swansea, South Wales, should make a special uniform for her daughter. In the shoulder there is a special bearing to prevent her daughter's injuries or bumps caused by a simple game.
"If Talia scratched or have small bumps while playing, a layer of skin will flake off and become a terrible blister," he said as quoted by the Daily mail.
Sian added, when Talia rubbing his own hands he will experience a painful blister skin when sweating. "The doctors said his condition as" butterfly children "because the skin is as delicate as a butterfly," says Sian.
Since birth, Talia have abnormalities of the EB, which suggests a genetic condition that stops the top layer of skin so the skin easily blister sufferers.
As a baby, Talia had little tiny blisters all over the body and the more after he started learning to walk. All over his feet there is a painful blister.
To prevent injury Talia, diets were carried out. He can not eat chips, bread rolls and other crunchy foods. When writing, he must also use special tape to prevent blisters on his hands.
Sian and Slee said the couple, the child will try to live a normal life. With gloves and all the bearings in the clothing, more relieved parents off the baby outside to play.
"I am more relaxed now Sanai, and he can play with his friends like any other," said the mother. Talia is usually played by two brothers, Jaden, 11, and Reece, 8, and sister, Seren-Willow, 2.
However, parents still worry how Talia live at adolescence and adulthood. "He's a little fighter. And whatever happens, he will continue to surprise with the courage he has."
Talia who daily use the material finer than wool garments will immediately experience severe injuries akihat friction fabric. He could not enjoy the chips. Therefore, these snacks will tear the mouth parts inside.
The little girl is the daughter Sian Williams is like a fragile doll. Talia suffered from a rare condition, Epidermolysis Bullosa Simplex. This disorder causes her skin to blister and flake off easily and cause severe injuries as a result only sedikt friction.
Every day Talia must wear waterproof gloves and wrapping the knee to protect it.
The mother, Sian, 33, from Swansea, South Wales, should make a special uniform for her daughter. In the shoulder there is a special bearing to prevent her daughter's injuries or bumps caused by a simple game.
"If Talia scratched or have small bumps while playing, a layer of skin will flake off and become a terrible blister," he said as quoted by the Daily mail.
Sian added, when Talia rubbing his own hands he will experience a painful blister skin when sweating. "The doctors said his condition as" butterfly children "because the skin is as delicate as a butterfly," says Sian.
Since birth, Talia have abnormalities of the EB, which suggests a genetic condition that stops the top layer of skin so the skin easily blister sufferers.
As a baby, Talia had little tiny blisters all over the body and the more after he started learning to walk. All over his feet there is a painful blister.
To prevent injury Talia, diets were carried out. He can not eat chips, bread rolls and other crunchy foods. When writing, he must also use special tape to prevent blisters on his hands.
Sian and Slee said the couple, the child will try to live a normal life. With gloves and all the bearings in the clothing, more relieved parents off the baby outside to play.
"I am more relaxed now Sanai, and he can play with his friends like any other," said the mother. Talia is usually played by two brothers, Jaden, 11, and Reece, 8, and sister, Seren-Willow, 2.
However, parents still worry how Talia live at adolescence and adulthood. "He's a little fighter. And whatever happens, he will continue to surprise with the courage he has."
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